I think I might know what you mean. I have the Hughes and Lupus - and have had strange type sensations on my head and strange headaches too sometimes. The neurologist said some of the sharp quick ones are called ice pick headaches, they last a short time but are really painful. I guess it's a type of migraine. But the weird sensations that I get are kinda numby crawly feeling. I hate them, but don't know what causes them...
Diagnosed with: Lupus, Hashimoto's Thryroiditis, Hypercoaguable State (2 DVT's)
I have a hard time taking my medications regularly and I am working on getting better at that!