So happy to hear you don't have Lupus, but share your frustration in not knowing what's wrong. Hopefully, the neuro will be able to offer some insight. Is the neuro you're seeing a sleep specialist or "general" neuro? I only ask because, like attorneys, if your neuro is a sleep specialist, they might not be the most familiar with latest trends, developments treatment, etc.that a general practice neuro might be.
Like you, I did not have many symptoms of Lupus (not the obvious ones anyway) and was rather suprised at the diagnosis. Once I was diagnosed with SLE and Sjogren's things made a lot more sense, like my tummy issues, depression, dry mouth and SORE feet. I just wasn't putting it all together (subconciuosly fearing I'd be viewed as a hypochondriac). I've reviewed/summarized enough medical records to realize what a hypo is and I didn't want to become a card carrying member of that club.
I understand that many Californians are leaving the state due to an unemployment rate exceeding 10 percent, but we gladly welcome newcomers (especially nice ones)!