Hey there. I know how you feel. I don't know how long you have been dealing with this - but it does definitely have ups and downs and a lot of the time I feel that the rheumatologists don't listen to what we are saying. Sometimes I think geez if I walk in with a cane or on a wheelchair, maybe she will get it!
I have decided to stop seeing my rhuemie and go only to my primary who is a lot better. But that's only after going through 4 primary doctors to get to him.
The other problem is that they throw depression meds to clear up something that is probably caused by the vasculitis and inflammation going on. I have been given more meds than I can count and the only thing that has ever ever helped me is the prednisone!
Good luck on your appoinment. Hopefully the "make doctor listen to me" gods will be shining on you!
Diagnosed with: Lupus, Hashimoto's Thryroiditis, Hypercoaguable State (2 DVT's)
I have a hard time taking my medications regularly and I am working on getting better at that!