The breathlessness rings a bell with me. I am dealing with that right now. The doc thinks it may be due to the cardiac effusion that I am dealing with right now but I have been going to many "ologists" to find out what the matter is.
I quite agree with you...my thoughts are that knowledge is power. It might not take away the facts about the disease, but I want to know all about it. I recently bought a book by Robert G LaHita. It is entitled: Women and Autoimmune Disease...he goes through many diseases and it is so informative and well written. I also like the book Living with Lupus by Blau and Shultz...that and The First Year of Lupus were the first two books that I looked at. I have recently been having some more problems pop up and have gone back to these books.
Education is also the way that I cope...we sound much alike in that aspect.
Oh I forgot to say Hi....so Hi Rosebud it is a pleasure to make your acquaintance. I am hoping tonight when you go to bed you will be able to breath normally.
I have promises to keep and miles to go before I sleep, and miles to go before I sleep.......Robert Frost