Welcome to the site. My name is Kathy and I have SLE, Lupus and a host of other lovely auto-immune disorders. I hear you about the Prednisone. I flat out refuse to take it. I have had Lupus now for some 45 years or there abouts. I just turned 50 last month. I am on a pretty high dosage of Imuran and Plaquenil and several other medications. I did not get diagnosed until I was 36 years old, because I could not get the doctors to listen to me. I was constantly being told that I was worrying and stressing needlessly and they treated me like I was a hypochondriac or druggy etc. It was terrible to say the least and the Lupus nearly killed me before I finally got diagnosed. It started affecting my heart muscle and lungs in a very negative way. I am glad that you found this site. There are a lot of good folks that come in here with avast wealth of information. I hope that you keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.