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Thread: Can't think clearly when i flare

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    Default Can't think clearly when i flare

    Hi! I just had a few questions on my mind about when i flare up. Its ao nice being able to talk to people who understand because there are days when i feel alone because no one around me understands the feelings of a flare.

    I was wondering if anyone has the feeling of being disoriented and they cant think straight when the flare. I have trouble catching my breath just walking from the couch to the kitchen. Ive been saying the wrong words when talking to my family,even sluring at times. I'm even having a little trouble typing right now because i'm having somewhat of a dizzy spell trying to kick in.

    I have to have my 18yr old daughter drive me to run errands most of the time because i usually flare when im out getting things done and its bad for me to drive.

    Sorry this is long, its just i havent been here long and i have so many things to ask since my doctors sick of listening to me. Is there a specific list of blood tests i should TELL her i want? I know shes going to hate that but she really hasnt done much.

    I did have some tests done the other day from a specialist but no results for a wk or 2.

    I was told by one specialist he didnt want to hear about any other symptoms other than what he is there for. He said "thats for your family doctor to put together". WOW, sorry i waisted your time!

    Thanks for being here everyone

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    Hey there Lucky7-thts also mine alongside 13 too 8)

    What you are experiencing is what we call a brain fog
    fuzziness, feeling like your in a dream, or sometimes which i love is the feelin of numbness like nothing can hurt you as if your in a bubble, people are talking to you and you can hear them but its not making any sence.
    you are deffo not alone i have them so often my peeps are used to it now and they just say *janes world?* :lol:

    keep it real
    ISDM
    xx
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

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    hey lucky7

    You most definately are NOT alone on this one. Brain fog is quite common. I have that just woke up feeling all day. I have trouble putting complete thoughts or sentences together.

    I feel like all my energy is going into making my body move that there's not much left over for thought process.

    I can't answer your question about the needed blood work. Oluwa or saysusie should be able to help with that one.
    Oh look ... a cookie

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    I just love you guys!

    You make me feel better when i read your replys and comments.

    I dont feel alone anymore and i dont feel like a "BOTHER". Youre very supportive and i appreciate that :lol:

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi Lucky7,

    What you are experiencing is not uncommon. Cognitive Dysfunction, or as we call it, "brain fog", is a symptom many, if not most of us have at one point or another. My brain fog is directly related to my flares. When I'm in the middle of a bad flare, I forget how to spell simple words I've always known, I can get lost driving in a town I grew up in, and I can expend so much effort walking from room to room in my house, wondering why I'm going to this room, and what am I doing, that I am exhausted and can do no more.

    It can be funny, like when I brushed my teeth with Preparation H instead of toothpaste once, and it can be frustrating and embarrassing as well. The good news is, it seems to not be a permanent thing. When my flares die down to a reasonable level, my memory and mental abilities come back, and I feel almost normal again. It can be hard sometimes though. Losing ones train of thought in mid conversation, forgetting the names of family members, and suddenly drawing a total blank in front of people, is embarrassing beyond belief.

    You are not alone with this. What is happening to you is hard to deal with, but know that there are other people like you who are struggling with the same problem. For whatever reason, knowing that you are not alone with a problem can really help a person to cope. I'm glad you chose to join our group. Welcome.

    Rob

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    Default Re: Can't think clearly when i flare

    Quote Originally Posted by lucky7
    Hi! I just had a few questions on my mind about when i flare up. Its ao nice being able to talk to people who understand because there are days when i feel alone because no one around me understands the feelings of a flare.

    I was wondering if anyone has the feeling of being disoriented and they cant think straight when the flare. I have trouble catching my breath just walking from the couch to the kitchen. Ive been saying the wrong words when talking to my family,even sluring at times. I'm even having a little trouble typing right now because i'm having somewhat of a dizzy spell trying to kick in.

    I have to have my 18yr old daughter drive me to run errands most of the time because i usually flare when im out getting things done and its bad for me to drive.

    Sorry this is long, its just i havent been here long and i have so many things to ask since my doctors sick of listening to me. Is there a specific list of blood tests i should TELL her i want? I know shes going to hate that but she really hasnt done much.

    I did have some tests done the other day from a specialist but no results for a wk or 2.

    I was told by one specialist he didnt want to hear about any other symptoms other than what he is there for. He said "thats for your family doctor to put together". WOW, sorry i waisted your time!

    Thanks for being here everyone
    your not alone, when i have a falre i know wy ahead its coming, get really tired even after a full nights rest, get a rash , joints ache, its all part of the disease....... taking plaquenil, for 4 months now feel better already, i try not to let this disease get me down, i try to stay in the positive. good luck reply if you want to talk, :BIG: cynda

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    Thank you guys!
    I do feel llike a stumbling idiot alot. My eyes get so heavy its hard to keep them open!

    I had to have my daughter count my cash the other day cuz i just couldnt get it done!

    Hey, another question. Has anybody heard of Candida? Theres a test to do at home and they say it can determine if you have it or not. If you do they say you most likely have an autoimmune disease?

    Thanks again!

  8. #8
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi Lucky7,

    I'm sorry I was not able to welcome you properly when you first joined. We are a having a flood of new members (a great thing) and sometimes I don't catch everyone the first time around. Anyway, you already know that I'm Rob. I was diagnosed with SLE in 2004, and I'm 41. What you are experiencing, is called Cognitive Dysfunction. We call it brain fog. I have it on a daily basis, some days are better than others.

    It can be frustrating, and scary, not to mention embarassing. I used to be the sort of person who others asked to proofread assignments, articles, whatever. I had a good memory for all sorts of things, words being one of them. Now, this very post I'm writing, I will have to look at 3 or 4 times to make sure the spelling and grammar are OK.

    I get lost on the way home, and I grew up in this town. I draw a blank when talking to people both in person, and on the phone. Not fun. The good news is, for most of us, this is not permanent. When my flares subside, my ability to spell mostly comes back, and I don't get very disoriented at all. I don't have any way of dealing with it other than just realizing when it's happening, and letting those around me know what's going on. Of course, when you post here, nobody is going to be surprised if your words are a bit garbled. We know here that sometimes others may not make perfect sense, so it's no big deal. Anyway, don't let the fog get you down, it's not permanent, and when it happens, we understand.

    Rob

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    Candida is a genus of yeasts. Many species of this genus are endosymbionts of animal hosts including humans. While usually living as commensals, some Candida species have the potential to cause disease. Clinically, the most significant member of the genus is Candida albicans, which can cause infections (called candidiasis or thrush) in humans and other animals, especially in immunocompromised patients.[1] Many Candida species are members of gut flora in animals, including C. albicans in mammalian hosts, whereas others live as endosymbionts in insect hosts.[2][3]

    The last decade has seen the sustained medical importance of opportunistic infections due to different Candida species mainly due to the worldwide increase in the number of immunocompromised patients, who are highly susceptible to opportunistic infections.[4] Meanwhile, the genome sequence of several Candida species has been completed, enabling the detailed investigation of some aspects of their biology with the aid of post-genomic approaches. The basic knowledge gained from these investigations of pathogenic Candida, and related yeasts, can translate into innovations in the development of novel antifungal therapies, original approaches for targeted immuno-interventions, or highly sensitive diagnosis of fungal infections.[4]

    Practitioners of alternative medicine claim that Candida overgrowth can cause various health problems, from fatigue to weight gain, but this is rejected by most doctors and there is no evidence to support the theory.[5][6]

    Candida antarctica is a source of industrially relevant lipases.

    Contents [hide]
    1 Laboratory characteristics
    2 Clinical characteristics
    3 Species
    4 Other
    5 References



    [edit] Laboratory characteristics
    Grown in the laboratory, Candida appears as large, round, white or cream (albicans is from Latin meaning 'whitish') colonies on agar plates.[7]

    Got this from http://en.wikipedia.org/wiki/Candida_(genus)

    I knew I had heard of it but I couldn't remember what, so I googled it :lol:
    Oh look ... a cookie

  10. #10
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    OMG You knew exactly what i was thinking! I do get worried about the way my words look cuz i think ive checked it enough and next thing i know i see alot of mistakes! UGH!

    It can be very embarassing! People have looked at me like im crazy when ive been out and i get that "fog" state going. I have trouble driving too. As a matter of fact i flared bad today right before i was leaving the house for the grcery store, so i had to have my daughter go with me to drive. My husband got upset cuz he said thats when i should have taken a nap instead of worrying about catching the sales taht would end tomorrow.

    I still find it hard to balance things. I do need to rest more. Im so used to being the caretaker for so many people in my life,this is new to me. Not being able to go go go.

    Thank you Rob, this forum was the best thing i could have done for myself

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