Results 1 to 6 of 6

Thread: Presentation after pregnancy?

  1. #1
    Join Date
    Sep 2006
    Posts
    126
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Presentation after pregnancy?

    Just wondering if anyone else had their symptoms come after pregnancy? My doctors back when I first started having problems suggested that sometimes pregnancy can cause things to start rolling. Now I don't know if that is what happened but it was curious.

    I think there is a greater auto immune thing happening I just don't know what LOL. I was diagnosed with juvenile diabetes when I was 12 and was told it was my body attacking my pancreas (aka autoimmune). Then years later at age 29 I had my son (after 9 years of trying) and a few months after he was born symptoms started showing up - fatigue, joint pain, tailbone pain, bruising, etc. Bloodwork was done and a postive ANA started the progress.

    Then when I was talking to my new rheumy a few appointments ago she said it would be best if I did not get pregnant right now becuase it could cause my problems to get worse or could even cause me to move from Undiff. connective tissue into lupus (I would suppose by bringing about more symptoms).

    Anyway I was wondering if anyone else was diagnosed with a connection to pregnancy status.

    I wasn't sure which forum to place this in LOL so please feel free to move if its not right!
    Amy
    Mommy to a cute little three year old.
    I am a Juvenile Diabetic diagnosed at age 12, Positive ANA, arthritic joint pain, extreme fatigue, cannot take prednisone and am allergic to Plaquenil. Undifferentiated connective tissue disorder, Graves disease and fibromyalgia

  2. #2
    Join Date
    Feb 2008
    Location
    Nova Scotia, Canada
    Posts
    1,692
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default

    Hi cherokee,

    My mother had lupus, but wasn't diagnosed untill she was in her 50's. My sister was not diagnosed till after her 5th miscarrige. By the way she now has two beautiful boys who are nearly done highschool.

    I'm still undiagnosed. I have has possitive tests on my rashes, fatique, joint issues, sun sensativity, but my blood work has been up and down negative and positive and boarderline.
    Oh look ... a cookie

  3. #3
    Join Date
    Dec 2008
    Location
    Phoenix, Arizona
    Posts
    1,013
    Thanks
    0
    Thanked 22 Times in 19 Posts

    Default

    This is a very sad issue for me. The doctor told me last week that if I want children I need to think about having them in the next few years. She said that I would already be a high risk person but with my lung issues and high BP she said it was even more dangerous. Tim and I are not even married yet and we are not ready to have kids. We really want them but not in the next few years. She talked to me about being pregnant and how this could cause a flare or could even throw me into remission. She said after I have the baby I could continue to be in remission or it could throw me into a bad situation with my Lupus. So, it is very possible that pregnancy caused you to flare even more. I would ask the doctor about it and see what they say.I am sorry you are feeling yucky and I wish that I could some how take it away. I am sending you gentle hugs :angel:
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

  4. #4
    Join Date
    Jan 2009
    Posts
    178
    Blog Entries
    1
    Thanks
    0
    Thanked 11 Times in 7 Posts

    Default

    yep! I have severe PPD(more like anxiety) after my son was born 4 years ago. Dr wanted to put me on antidepressants. Since I was breastfeeding and also had a very bad feeling about my PPD being connected to the physical symptoms I had I refused Antidepressants until a full physiological work up had been done..

    Sho'nuff I had a very hyper thyroid.
    Its all been down hill since then
    32 YO Wife, Mother and Advocate
    Lupus - Subclavian Bypass May of 2009. Ectopic Lentis, Scoliosis(not lupus related)
    Current medications: Aspirin, Plaquenil, multi vitamins, folic acid, Methotrexate, Tramadol PRN

    You can find me on facebook at www.facebook.com/sororenotis
    Please tell me you are from here and who you are if you add me there.

    I work full time and Leader for International Autoimmune Arthritis Movement
    http://www.iaamovement.org/

  5. #5
    Join Date
    Sep 2006
    Posts
    126
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Quote Originally Posted by Danica01
    This is a very sad issue for me. The doctor told me last week that if I want children I need to think about having them in the next few years. She said that I would already be a high risk person but with my lung issues and high BP she said it was even more dangerous. Tim and I are not even married yet and we are not ready to have kids. We really want them but not in the next few years. She talked to me about being pregnant and how this could cause a flare or could even throw me into remission. She said after I have the baby I could continue to be in remission or it could throw me into a bad situation with my Lupus. So, it is very possible that pregnancy caused you to flare even more. I would ask the doctor about it and see what they say.I am sorry you are feeling yucky and I wish that I could some how take it away. I am sending you gentle hugs :angel:
    I am sorry hon, you are young too and I know its hard to face those types of decisions.

    I was 29 when I had my son, but had tried for 9 years. I had one miscarriage in those years and then was blessed to have my son. I am selfish and I would have had him anyway even if I knew for sure that was waht caused the symptoms to come on. He is my baby, my son my heart, I would do it again 100 times to have my son. I will deal with the pain of the joints and symptoms and do my best to live a good life for him and with him.

    Medicine is not always spot on, so give yourself time to think and if you do want children later you can always think about other options. If you are ok with things such as adoption, etc. then those are viable options for you later on down the line. I always wanted to adopt a child from China. Not sure that I could with finances and health issues but it would be so wonderful. I do want one more child but my husband does not so it looks as if I won't have pregnancy involvement with this disease unless hubby changes his mind. (the big stinker!
    Amy
    Mommy to a cute little three year old.
    I am a Juvenile Diabetic diagnosed at age 12, Positive ANA, arthritic joint pain, extreme fatigue, cannot take prednisone and am allergic to Plaquenil. Undifferentiated connective tissue disorder, Graves disease and fibromyalgia

  6. #6
    Join Date
    Jan 2009
    Posts
    2
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    YES! My symptoms started after my last pregnancy. I suspect lupus was there LOOONG before, but it wasn't until my last pregnancy that things got BAD for me. My history is this:

    in 1999 I had a still born at 30 weeks
    in 2003 another stillborn at 31 weeks
    in 2003 a miscarriage at 4 weeks
    in 2004 I had my oldest at 31 weeks
    in 2005 a miscarriage at 20 weeks
    in 2006 I delivered a full term baby

    With my last pregnancy I was sent to a (another) specialist for more testing to try to figure out why I could not carry a baby to term. The only thing that came back was a blood clotting disorder, I was put on Lovenox and for the first time in a years I felt good. I was able to carry my daughter to 37 weeks, she was delivered via c/s due to my other loses. Almost immediately following her birth I developed a rash on my face, it was a perfect circle right under my bottom lip. My OB thought maybe an yeast infection and mention lupus, my PCM thought maybe eczema, but mentioned Lupus and sent me to an allergist, he thought lupus, but wanted a dermatologist to look at it, he said lupus, while I was in his office I asked him about a rash under my arm that developed after my first pregnancy in '99, he gave me the cold shoulder and said I wasn't there for a rash under my arm just the one on my face, and if I wanted him to look at the rash under my arm I must come back at a later time. (very nice, huh?) needless to say I never went back to him, but gladly took the steroid cream to get rid of the ugly rash on my face that by this time had been there for 6 weeks. I went back to PCM, he ran some blood work on me. My ANA (according to my PCM) was only slightly high...not enough to diagnose me with anything. I also had:

    -the typical butterfly rash
    -pain throughout my entire body
    -fatigue
    -a blood clotting disorder
    -my fingers turn blue when they are cold
    -numbness with a shooting hot pain down one side of my leg
    -headaches
    -swollen lymph nodes

    I gave up after getting the run around from so many doctors.

    Here I am 2 years later, last Friday I went to a new doctor for the second time about the rash that was on my arm (it changed so I thought I should have it looked at). He said 'I really think you have Lupus' took a biopsy of my rash, some blood work and said 'I will see you back here in a week, we are going to get to the bottom of this because you have been through too much as it is' I could have kissed him. I go back Friday to get the results. I am praying it is not Lupus, but if it I will not be surprised. I will just be happy to finally have some answers.

    Monday I woke up for the first time in about 3 weeks without joint pain, and without feeling like I just want to sleep all day. I am guessing I was in the middle of a flare and maybe that is why the rash changed? No idea...

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •