Welcome to the site. My name is Kathy. I am 50 years old and I did not get diagnosed with SLE, Lupus and Sjogrens until I was 36 years old, but they believe that I have had Lupus since the age of about 5 or 7 years old or there abouts. I see where you are worried about sending your daughter to school where the chickenpox are going around right now. I have to ask whether your daughter is vacinated against the chickenpox. I think if it is possible that she should be vacinated against the chickenpox, because in my case I got them at the age of 35 when they did not have the vacine available and boy it really made the Lupus a hundred times worse for me.
I am very fortunate that this disease has not as of yet shown up in my daughter or my son. They are adults now. I pray everyday that my daughter will never have this illness. I often worry about whether if she has a daughter if the granddaughter will have it.
I have a younger sister with Lupus and my twin sister has Celiacs Disease. There are a lot of Auto-immune disorders in my family.
I hope that you keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.