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Thread: anybody with lupus in orange county, ca??

  1. #11
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    Question

    AngelOliver-

    Were you diagnosed with the Lupus Anticoagulant Antibody also?
    I'd rather be hated for who I am, than loved for someone I'm not.

  2. #12
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    Default hi

    Oh Micro,

    My story is a little strange. They said i had Lupus before Christmas when i first joined here.Then a few months later they said its not Lupus its M.E Chronic Fatigue Syndrome.Diagnosis may change who knows.The Doctors in the UK have not been so good to me and ive been messed around a bit. xxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  3. #13
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    Default

    Hi Cynda Rae,
    I am not in Orange County but I am in Los Angeles. I am here to talk anytime about anything. Your not alone nor are you the only one in S. Cal with Lupus. We are here...just Holler!

  4. #14
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    Wink I live in Orange County California!!

    Hi, I would love to talk to you. Would love to know who your rheumy is and if you like them etc..

    Mama Meg

  5. #15
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    Burbank, california
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    Hello all,
    I am in Burbank and still pretty new and aggrivated with all this. Any groups?

  6. #16
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    Jan 2011
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    Orange County, CA
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    Hey Cynda Rae!
    I'm from northern Orange County (Westminster area) but I often visit Irvine. Whenever you would like to talk or hang out, I would love to grab a cup of coffee/tea. We can always meet in the middle (Ivine area). Feel free to private message me.

    Cheers!
    "We make a living by what we get. We make a life by what we give." - CARE

  7. #17
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    Apr 2011
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    Costa Mesa, CA
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    Default

    I am in Costa Mesa. I would like to talk as well. Just diagnosed and still don't believe. In denial I guess. I understand what you're saying about nobody understanding. My email address is susanacevedo@live.com, just send me an email and we can talk.

  8. #18
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    Apr 2011
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    Costa Mesa, CA
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    Did they do an ANA test? My doctor did an ANA test twice just to make sure the results were correct. Doctors are not good to anyone, anywhere. They don't understand the pain, frustration, and loneliness of having a disease.

  9. #19
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    Default

    Hi there Cynda,
    I grew up, in Newport Beach for 35+ years, I am now in Arkansas, although, I am always up for a chat.
    ~Dana

  10. #20
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    Default

    HI
    i live in OC and am new to lupus and sjogrens.
    do you like your doc? what symptoms have you had. my are very few... face rash, joint pain in hands, and positive ana, ss-a, and thyroid tests. plus the symptoms of sjogrens, dry eyes and mouth,
    i consider myself very lucky.

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