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Thread: Hello

  1. #1
    Join Date
    Nov 2015
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    Question Hello

    Hello,How are you all doing?? I have been trying to get this figured out,, I just joined,I still don't know if I'm doing it right because I been messing up on everything else. I'm LeeLee, I'm 53 from Mississippi and I was diagnosed with fibromyalgia in 2002 and Lupus in 2010 (SLE) I've been on Plaquenil 200mg 2 times a day and DHEA 50mg that I just buy over the counter every since I was diagnosed with Lupus in 2010. I'm in the process of looking for another Lupus Dr now.My Lupus Dr said we didn't want my Creatinine level to get to 1.9 because that's when it start messing with your kidneys,,we'll it been 1.2 every since I was diagnosed 3-20-15 it was. 1.2 and 6-20-15 it was1.4 and 9-2-15 it was 1.5 so I ask him why did he think it was going up like it was and he kinda got smart and I did to,,then he said it could be one of my meds,, I said OK you my Dr which one,no answer,,so he ordered more blood to be done in a month,,in the mean time I had two different nurse's to check my meds to see if any of the would / could be effecting my Kidneys and both of them said none of my meds should mess with my kidneys. I went for my blood work 10-9-15 and My Creatinine had went to 1.6 and I haven't heard from my Lupus Dr since I called 4 times and they will not call me back and tell me anything.
    That's messed up on so many different levels! This is my life!! I'm trying to find another Lupus Dr and a kidney Dr, ,but it take a while to get into those specialist..
    Sorry you all I didn't mean to write a book.
    Thank you for listening!!

  2. #2
    Join Date
    Mar 2011
    pinjarra, western australia
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    Thanked 1,844 Times in 1,279 Posts


    hi leelee.

    one thing that many doctors seem to forget.
    basic immune system response101.
    our immune system is made to adjust its self.
    it is supposed to be able to combat whatever is attacking it.

    so therefore if we throw a germ at it .... it will modify to fight off the germ.
    but if we throw medication at it guess what doctor !!!!!!
    it will modify itself it fight off the medication.

    that is why we have regular blood checks,
    and regulate our medication to keep it effective.

    if your creatine level is still climbing,
    then something is out of balance

    sorry I am not a doctor, I cannot tell you what is out .....
    but your immune system is working harder than your medication at the moment.
    so something needs to be adjusted.

    I hope you can find a doctor who can help you.
    unfortunately doctors do not like to admit they cannot help.

    it is easy to fix a broken leg ....
    and easy to repair a hole in the heart.
    these are repairable problems.
    our problem is not repairable.
    and doctors do not like admitting that there 10 plus years of training has failed.
    When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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    Saysusie (11-25-2015)

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