Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: hello everyone, iam new!!!!

  1. #1
    Join Date
    Jan 2009
    Location
    so cal
    Posts
    7
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default hello everyone, iam new!!!!

    :P hi everyone, iam new to this group, got newly diagnosed in cot,2008. one question for all of you , my first signs of lupus was a rash on my chest, then on my sclap, then face.also a general feeling of crappy. is this the norm?? anybody with the same signs??

  2. #2
    Join Date
    May 2008
    Location
    Portland, Oregon
    Posts
    1,108
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hello cynda Rae and Welcome.....

    Lupus affects every single person differently and we each have our list of symptoms.

    When I was very first diagnosed, my symptoms started with a general feeling of yuckieness, just like you describe. Sort of like having a flu every morning. I had low-grade fevers, sore throat, aching head, extreme tiredness, and joint pains that started mildly in my fingers and wrists only. I was going to Court Reporting School, and I thought the aching fingers was because we were on Christmas Break from school and I hadn't been using my machine. Then they got stiff and began to swell, and hurt worse and worse with each passing day. I ignored it. One morning I woke up and couldn't make fists with my hands. I could not close my fingers because of the pain and swelling. I was only 18, still living at home with my parents. My mom noticed, asked me about it, and immediately took me into the family doctor. My doctor suspected Lupus, because he had just diagnosed another young girl a few months previous, so he ran some tests for Lupus. He didn't say anything to my Mom and I, just told me to rest and come back two days later. Two days later, I had Lupus. I had tested positive on every test he ran. He tried to break the news gently. I was devastated! I didn't understand. My mom was equally devastated. My doctor had me try Aspirin and bedrest. That was sort of the initial treatment back then (27 years ago). When my stomach could no longer tolerate the aspirin, I was put on Prednisone. I developed the buttefly rash on my cheeks and nose within a few weeks. I never did have it anywhere else, though.

    So, in answer to your question. Yes. Your rash all over, and the general crappy feeling is very normal to Lupus.

    I'm so sorry you're feeling terrible, and having to deal with a new diagnosis. :cry: Does your doctor have you on any medication? Are you getting any relief from your symptoms throughout a day?

    I'm wondering if you've looked through the Forum and seen the Sticky post for Homecare 101, I think. It's by one of our members, Oluwa. It's an excellent reference for the things that can help you survive this disease day to day. Things that are important to pay attention to in order to keep yourself as healthy as possible.

    I hope this has helped you some. I'm certain others will be along to greet you soon and share their insight.

    Take care,

    Lori :P

  3. #3
    Join Date
    Dec 2008
    Location
    Chelmsford, Essex, England
    Posts
    1,044
    Blog Entries
    1
    Thanks
    15
    Thanked 14 Times in 9 Posts

    Default

    Hello

    and welcome to the forum

    I went to the drs with summin completely diff, then as i was walking out i asked what my blinking rash was on my face, i was pulled back into the drs and she left and came back with all of them as they tried to diagnose it, she said lupus, took alot of symptoms ive had over the years and diagnosed me b4 i went for tests etc, 4 months down the line after being thrown from pillar to post i got it confirmed i had SLE, soo there we go thats my story in a nut shell, every year around april time when the sun shows its self i get a lovely rash (malar) across my cheeks and nose, so yes in answer to your question,

    take it easy,
    btw you can ask any question you like these ppl in this forum are pretty amazing one of the mods i swear is like a nurse or summin she knows soo much

    only thing they cant tell you is the lottery numbers

    peace
    ISDM
    xx
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

  4. #4
    Join Date
    Feb 2008
    Location
    Nova Scotia, Canada
    Posts
    1,692
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default

    Welcome cynda rae


    My first signs of trouble started when I was in my late teens. Butterfly rash they call it.

    My doctor at the time identified it and said we'll have to keep an eye on you. He did not say that it was lupus related.

    I've had the butterfly rash ever since. It fades off and flares up. I go through periods of fatigue. I just thought I was lazy :lol:

    I can sleep all day and all night with no problems. Any place any time.

    I've developed a few more interesting rashes ... lupus related.

    Now I'm 48 yr's old...with a raft of other lupus related goodies, but still no diagnosis....go figure.

    My mother had lupus and my sister is diagnosed....me...I'm just sitting in the waiting room waiting for someone to get a clue.
    Oh look ... a cookie

  5. #5
    Join Date
    Apr 2008
    Location
    Klamath Falls Oregon
    Posts
    291
    Thanks
    0
    Thanked 10 Times in 7 Posts

    Default

    so, that must be where you came up with the name sits_inthe_corner ?
    Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulations, that we may be able to comfort those who are in any trouble, with the comfort wich we ourselves are comforted by God. 2 Corinthians 1:3

  6. #6
    Join Date
    Feb 2008
    Location
    Nova Scotia, Canada
    Posts
    1,692
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default

    :twisted: actually scubagramplit

    I spent ALOT of time in the corner growing up...I've gotten quite comfy here.
    Oh look ... a cookie

  7. #7
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    Hello Cynda,

    I just wanted to welcome you to our group. Please, make yourself at home!

    Rob

  8. #8
    Join Date
    Oct 2004
    Location
    Illinois
    Posts
    955
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Welcome aboard, CYnda!

    My diagnosis came after feeling I had the flu and it just would NOT go away. Achy, fatigue that would not quit. Good doc, VERY good doc, he did the right tests during the first month of trying to figure it out. And then sent me on to a rheumy right away.

    I've never had the butterfly rash - sometimes rather glowing cheeks, but never the rash. Mine has been all aches, pains and fatigue. Some days good, some not so much. Oh yeah, and sun sensitivity...thus the moniker! 8)
    ~"I find hope in the darkest of days, and focus in the brightest. I do not judge the universe." (Dalai Lama)

  9. #9
    Join Date
    Apr 2008
    Posts
    961
    Blog Entries
    4
    Thanks
    33
    Thanked 47 Times in 43 Posts

    Default

    I just felt tired all the time, and was always getting sick with one virus or another/immune system was depressed. I was diagnosed initially from a history of my symptoms, plus the butterfly rash was on my face. My Dad had Lupus/Dr. then knew it ran in the family. I believe, my grandmother on my father's side had it, but she was never officially diagnosed with it. She just seemed to me to have symptoms of it, looking back now. Anyway, back then, it was really hard to get a diagnosis of Lupus. It was not commonly diagnosed. My Dad was really lucky to get diagnosed in the 1950's by a specialist, who recognized the symptoms, including the discoid Lupus on his face. I think the Dr. who diagnosed my Dad was a dermatologist.

  10. #10
    Join Date
    Jan 2009
    Location
    Currently still in Weston Village, Runcorn, United Kindom
    Posts
    268
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    welcome
    The worse the bad times are the more we appreciate the good things in life..

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •