There are many members here who have their organs involved due to Lupus. Many with pericarditis (the heart), pulmonary hypertension (the lungs), nephritis (the kidneys), and Central Nervous System dysfunction (the brain). So, you are not alone.
However, with proper medication, treatment and self-care, many of those with such involvement have found ways to maintain a reasonably normal lifestyls.
Hopefully, some of them will be along to share with you their experiences and provide some suggestions on how you can manage your life with organ involvement.
It is not at all uncommon for Lupus to damage our organs. But, there are medical treatments available for each organ involved. Please speak to you doctor about appropriate treatment and let us know how you are doing.
Peace and Blessings