Welcome to the site. My name is Kathy. I have SLE, Lupus and several other auto-immune problems. I just turned 50 and have had Lupus since about the age of 5. I have had this rotten illness for about 45 years. I am sorry to hear that you are in constant pain. What medications are you on? Have you let your doctor know that you are in pain? There are a lot of good people that come in here and they will offer good information as well. I hope that you keep posting and that I can get to know you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.