I can't speak for anyone else, but I'm a completely combustible loon most of the time, I just hide it well! :lol: Seriously, the symptoms of Lupus are so diverse, and so different for each person, that there is no typical, or textbook case. I'm curious, Have you read the diagnositic criteria for Lupus? It's explained in detail in one of the "sticky" posts at the top of the forum. I wonder if your rheumo is aware of the criteria. I know it sounds rather ridiculous, but you would not believe just how little many people in the healthcare industry know about the disease. The ignorance is widespread, and shocking. Your best course of action on one front is to become an educated patient so you can be an advocate for yourself. It looks like you are well on your way to achieving that.
Your rheumo must believe you have some sort of autoimmune disorder, as you have been prescribed Plaquenil. Basically, Plaquenil is only prescribed as a disease modifying drug for people with autoimmune disorders such as Lupus, and it's also used to treat malaria. I'm assuming you haven't been to the jungles of Central America lately, so that kind of rules out malaria. As far as seeing as many Dr's or Specialists as possible, if you feel that's what's needed, then you have every right to pursue that course. If your job gives you a hard time about it, remind them that the ADA is there to protect people in your situation.
You mentioned in your other post that you have now been on Plaq. for 4 months. It can take up to 6 months to start working, and that's just about how long it took for me to notice any beneficial effects. I'd give the meds more time, but that does not mean you have to be idle and just wait. I would ask for 2nd and even 3rd opinions, and there's nothing wrong with seeking out various specialists in order to get the proper diagnosis.