My name is Dency, I am 36 years old and live in a small town in Texas. I have 3 children, all girls, ranging from 1st grade to 6th grade. My youngest was by birth and my oldest we adopted when they were 9 and 10. I am a certified English teacher but use my training in teaching a 4 year old class at a Mother's Day Out Program. I love my job, it is physically hard, with Lupus, but since it is only 2 days a week I am able to manage it at this time. I never thought I'd view a part-time job as a long term career. Once I was diagnosed I knew this was a job I needed to hang on to and look at as my future.
My mother died from Lupus complications 4 and 1/2 years ago at age 60. I was diagnosed with Lupus, a year and 1/2 ago, close to the 3 year aniversary of her death. I learned much from my mother on how to cope but, I don't have her to answer my questions now. That's why I am reaching out now. Luckily, I have good friends that I work with and husband that knew the min I told him it was Lupus what that meant...he saw my mother live through her last 8 years of her Lupus.
Also, lukily my Dr caught mine before I did. Since my mother had it most of my life I figured I'd catch it first. I went in complaining of tiredness, confussion, not dealing with anything well, etc figuring I'd be put on anti-depressants. This Dr had been treating my arthrisitis for a year. I was telling her my symptoms when she was fliping through my file and saw on my history that my mother had had Lupus. My Dr's sister has Lupus and she herself has bad arthristis. She immediately started asking me, without telling me what she was looking for, questions relating to Lupus symptoms. I answered way too many yes. Then she told me she thought it was Lupus. I sat there stuned but not shocked. Why didn't I catch it? Even with positive test results I questioned it until I went into a flare up Christmas before last and got the full blown rash I had seen so many times on my mother. That was the true blow. That's when I cried and cried.
When I'm in a flare up or trying to stay one off I feel sooooo helpless and useless to my family. I also have Type II diabetes so that just adds to my health problems and frustration.