Welcome to the site. My name is Kathy. I have SLE Lupus and have had it for most of my life. I did not get diagnosed though until I was 36 and the Lupus started attacking my heart. I hear ya when you say that family just does not get it. I have a younger sister with it too. I try to look at the positive side of life and I flat out refuse to let this illness get the best of me. I hope that you keep posting as I would like to get to know you better.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.