Welcome to the site. This is a great site. I have Lupus and have had it most of my life. I just turned 50 in December. I am sorry to hear about your nieces situation. I also have a younger sister with Lupus and a great Aunt that they believe passed from it before I was born. I hope that you keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.