I wanted to welcome you and say thank you for sharing your story There are some very educated people here who, I am sure, will be along very shortly to guide you through your questions I have had a lot of issues like you are having. I recently started having the female issues and just had my first surgery last week. While in there they found a hernia which I have to go back into surgery as soon as possible. I too had the chronic fatigue, pain and hair loss. The night sweats arer the worst :!: I would wake up with nothing on and not remember any of it I know, you are just all around uncomfortable
Lupus is very hard to diagnose and people can go for years and even their entire lives without technically being diagnosed. One of the problems is that there are so many autoimmune diseases that can mask themselves and show the same symptoms of other diseases. It is time consuming and very hard on us. Please, do not give up :!: You are right, when you have dealt with chronic pain for so long you can really read and understand your body. Keep pushing for answers :!: You have to be your own advocate and if you have any doubts with your doctors, look for another one until you find one that will work with you and listen to you Hang in there and we are all here for you :angel:
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram