Welcome to the site. My name is Kathy and I have SLE Lupus. I am sorry to hear the way the doctors are treating you. Believe me you are not alone. A lot of us have been through the same thing and some are still going through it. You have to make the doctors listen to you or they will brush you off every single time and that is sad. Do you have Pernicious Anemia? Did they decide if you have a B12 deficiency? I am just wondering is all, because that is what I have also been diagnosed with last May.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.