I'm glad to find you. After weeks of feeling ill and miserable and going through complete shock and every emotion under the sun i'm finally getting my head around things.
The irony is not lost that the one time when I really needed a doctor to look after me and be supportive I've had to argue my corner and be pushy to the point I feel exhausted just dealing with the medics and I know I've not got too far yet. The worst thing at the moment is my brain is foggy - I can't remember half of what I need to. I phoned up my sister this morning and asked if it was 'normal' to put the cornflakes in the fridge.
My sister has just been through 4 years of exactly the same diagnostic fun and games so its a familiar path. She's currently being treated by a rheumetologist for a condition that last year he told her she didn't have and is completely exasperated by it all. I just didn't think a few weeks ago I'd find myself walking the same road.
'My doctor gave me six months to live, but when I couldn't pay the bill he gave me six months more.'