I'm Rob. I'm 40, and was diagnosed with SLE five years ago. You don't need to be concerned about whether you are alone or not with this, because you are not. I tried to deal with all of this by myself too, but I finally had to actually talk to another person who actually has Lupus. I went for a couple of years talking to no one. When I did decide to talk, I realized that despite the good intentions of those around me, the only person who could truly understand was another person with Lupus. That need led me to this site, and I've found friends and understanding here more than any other place, or group I've been around.
You mentioned, that things are getting harder for you. That seems to be the way this goes for many of us. We slow down, the opressive fatigue and myriad of other symptoms can drain us of every last bit of strength. Sometimes, when I can actually sleep, I sleep the clock around, and two hours after I wake, I can't keep my eyes open. I call it "lead blanket" fatigue. You feel so slow, heavy, and bogged down. But, I do manage to have some good days too, and that's enough to keep me going through the bad ones.
Anyway, I just wanted to say welcome, and make yourself at home. This is a really active forum, and I'm sure others will be along shortly to say hello.