Welcome to the site. My name is Kathy and I have SLE, Lupus. I have had it for about 45 years. I know how frustrating it is to get the doctors to listen to you. You need to see a good Rheumatologist who specializes in the field of Lupus. This is a rotten illness with no cure and it is hard to diagnose, because it mimics a lot of different diseases big time. It sounds like if you have it that you are having kidney involvment which can be very serious big time. I hope that you can get in to see a Rheumatologist. There will be others that come in here that have really good information. Please keep posting as we all are here for you and care for and about you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.