Well you found a good site for sure. There are a lot of us with this illness and who have had it for years. I sure do understand about the doctor situation. For the past year, I have been beeing seen by the Physician's Assistant in my Rheumatologists office. She is a nice lady, but she can be rather rough talking at times. She got on my case, because my blood pressure was up on Thursday. Shoot I just had a death in the family and I am in a bad flare. She put me back on Prednisone and pain medications. I also had to get a shot in the hip and well I am feeling better, my right wrist still hurts. I hope that you can find a better doctor and very soon and that you get to feeling better. I hope that you keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.