Welcome to the site. My name is Kathy. I have SLE Lupus and have had it for they believe at the very least 44 years. I will be 50 the 17th of this month. Literally for years and years I would go to doctor after doctor only to be dismissed and not listened to at all. I was 36 years old when I got diagnosed and you that was not right of them to do me like that. I nearly died before they finally listened to me and decided that there was something really wrong with me. I thought for a long time about how much damage has been done to me for having to suffer for years without treatment, but you know though it really does not make any difference at all, because it is a case of could have, should have, but did not happen to get diagnosed early in the disease process. Even now after all of theses years with a diagnosis, it still makes me mad that it took them that long to realize that I was definitely sick and to do anything about it. I hope that you get into a good doctor and that they put you on medication.
I am wondering if you are on any medications like Plaquenil or Prednisone or NSAIDs yet? Please post and keep us up to date. We all care for and about you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.