I'm not diagnosed yet with lupus, I have been diagnosed with FMS though. But I TOTALLY understand what you mean when your friends think your a biz or a flake because your in so much pain you can't go out or even think straight.
I have found this forum to be so helpful, a place where everyone understands and as someone said (I don't remember who) They love you not because you have and illness or in spite of the illness, but because they would love YOU.
In high school, I was labeled as the biz, because most high school kids just don't understand that it's possible to be sick all the time and not have cancer (at least that's how my high school was) And I didn't do much to help that because when I was in pain and someone would touch a sore spot, I would snap at them. I would feel awful afterward, but they wouldn't listen. bleh.
It's really good that you have your mom and dad as support. I don't know what I would do if my mom hadn't been there for me, especially with my last bout of being sick, it was so bad I had to drop out of college for the next 2 semesters. My dad doesn't really get it, he's still trying to comprehend that I have to sleep and rest a lot because I have to, not because I want to or because I am lazy.
Sorry, I kinda dragged on (and about myself)
If ya need to talk, there's a bunch of people here who will listen, including me.:^)
"Always remember to be kind, for every person you meet is struggling through their own long hard journey"
"You may be one person to the world, but to one person you may be the world."