Welcome to the site. My name is Kathy and I have SLE Lupus and several other auto-immune disorders. I have lived with Lupus for a very very long time. I take Plaquenil and an Immunosuppresent drug (Imuran). These medications seem to do ok for me. I mean nothing is perfect, but it is better then nothing. Sometimes with this illness we have to take immunosuppressors to stop the flares and the damage from the flares. I have been on medication for about 14 or 15 years, but the Rheumatologist believes that I have had this illness since the age of 5 and I will be 50 on the 17th of this month. I can sure understand your fear of this illness, but it can be managed even though there is no cure as of yet. I hope that one day there will be a cure. Until there is a cure we have to live with this illness and make adjustments in our lives to live the best that we can. Are you on any medications yet? Keep in mind that if they put you on Plaquenil that it takes up to 5 months for you to get the full benefits from it. I hope that you keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.