Hi Purple Butterfly,
Welcme to the site. My name is Kathy. I will be 50 in December and I have SLE Lupus and a host of other auto-immunes big time. I am wondering if you are seeing a Rheumatologist. I think that is who you should be seeing along with the Neurologist. It sounds like you could have renal involvement with the adema. Have you had a kidney biopsy done or any other types of tests to look for renal involvement. Ascites sounds like you may have liver involvement too. There will be others with more information that could help you. I have adema at times too in my legs and the numbness in my hands and feet due to peripheral neuropathy and Pernicious Anemia. I hope that someone will come along with more information. Please keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.