Welcome to the site. My name is Kathy and I have SLE, Lupus and Sjogrens and several other Auto-immune disorders. What I am wondering is why your doctor did not put you on any of the NSAID's for the pain and inflamation of your joints. When you see your doctor again tell him right out that you want to be put on NSAID's. I am taking Sulindac (Indocin) which is a perscription NSAID (Nonsteroidal Anti-inflammatory Drug). Salagen is a good drug for the Sjogrens dry mouth and Restasis is good for the dry eyes, but it sounds like you need an NSAID medication. You can take some over the counter ones like Aleve or motrin. I would definitely address this with this doctor and also I would list all of my symptoms right down on a paper and any questions that I would need answered and discuss it with him.
There is no cure for these illnesses and they are chronic. It can be treated though. You need to be careful about the sun and flourescent lighting as these can trigger a flare. The worst thing though of all is stress. Stress will set off a flare very quickly. I hope that you keep posting.
There are a lot of good folks that come in here. You met SITC and she gave you some good advice. I hope to get to know you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.