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Thread: Unable to get up :(

  1. #1
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    Default Unable to get up :(

    In the mornings im really struggling to get out of bed for two reasons:
    Firstly my body feels asleep if you get me, its still heavy and achey
    and secondly, my eyes struggle to open, so i end up falling back to sleep for hours, which i never used to do.
    The thing thats annoying is that before i had lupus i would get up at 7am go to bed at midnight, but now im going to bed at half ten at night and getting up at 11am, and any earlier seems impossible?!

    Has anyone else experienced this?

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    Hi,
    I have big time. I am wondering if you are on medications for your Lupus? I go to be pretty early when I know that I have to be up in the morning and boy is it a struggle sometimes. Have you talked to your doctor about this problem?

    Hugs,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

  3. #3
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    I have this problem almost every day. I call it "lead blanket" fatigue. It's opressive. I used to work just fine on 5 or 6 hours of sleep. Now, 12 hours of sleep and I'm still tired. Not much fun. I have the added problem of not being able to sleep well, so some days I just wander around in a daze.

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    Im going on some medication soon, but not yet as i have to see some other person first, but said other person hasnt sent me an appointment yet What you both describe is exactly what i feel, especially rob with the 'daze' some days im just so tired im completely not with it and its so annoying grr.
    I told the doctor but the past few weeks its got a lot worse, so i'll have to tell him when i see him in feb or when i see this specialist nurse whenever she gets round to sorting an appointment!!

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    Hi,
    Why are they holding up on giving you an appointment? I think that that is sad to say the least. Is there any way that you can get them to speed up the process of getting you in as soon as possible. I have days like Rob and you too where I walk around in a daze and nights when the pain is severe and I can not sleep. It is not fun at all.

    Hugs,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

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    I GO THROUGH THAT MOSTLY EVERY MORNING ITS A HORRIBLE FEELING . I USE TO GET UP EVERY MORNING AND MAKE MY HUSBAND BREAKFAST AT 5 AM AND BE RUNNING AROUND MOST OF THE DAY. NOW I SAY HE CAN JUST GO TO MICKEY D'S CAUSE I CAN'T SEEM TO BRING MYSELF INTO GETTING UP YOU ARE NOT ALONE I THIS ONE.
    The boundaries which divide life from death
    are at best shadowy and vague.
    Who shall say where one ends,
    and the other begins?

  7. #7
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    Quote Originally Posted by KathyW1958
    Hi,
    Why are they holding up on giving you an appointment? I think that that is sad to say the least. Is there any way that you can get them to speed up the process of getting you in as soon as possible. I have days like Rob and you too where I walk around in a daze and nights when the pain is severe and I can not sleep. It is not fun at all.

    Hugs,
    Kathy
    Well basically its an admin error, my rheumy passed a note on to see this specialist nurse then i could have my prescription, but this specialist nurse hasn't sent the appt out, even though she wa meant to 2 weeks ago, my mum keeps ringing up and they keep saying there sending it out, but to no avail...

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    Hi,
    I see now what you are saying. I thought that you were in the states. I hope though that they can get it sorted out and that you can get seen. I think it is terrible when a person has to pay for anothers errors and that is not right.

    Hugs,
    Kathy
    Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

    Medications:
    Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

  9. #9
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    I have some pretty bad sleep issues too. I just can't move, can't open my eyes. I have told my family that they need to make me get up and move about a bit, otherwise I just go back to sleep, and this can sometimes happen for as long as 2 days straight.
    The lead blanket is a great explanation. My body is just too heavy to move. I don't know if it's meds, or something else, but it is not unsual for me to not be able to wake up on my own.
    SLE, Raynaud's, Fibro, DDD, Neuralgia, Neuropathy, and so on and on and on....
    Cymbalta, Paxil, Vicodin, Promethazine, Valium, Calcium, Zyrtec

  10. #10
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    I have a little cat....who weighs a ton.

    Every morning at 4:30 he climbs on to my sore feet and walks up to my sore knees where he will stop and knead for a bit...then he'll walk up to my sore ribs...where he'll stomp around for a bit...then he lays accross the top of my head.

    ...and starts batting my nose. He is free to a good home and I'm sure he will be able to motivate you into getting up :lol:

    Seriously though, I could sleep all day and all night ... there's not enough sleep time.

    I wonder if it's because we are not really getting a deep good sleep because of pain issues?
    Oh look ... a cookie

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