I just read your post. I try not to read the sites that describe this illness, because they always put the worst possible scenario in there. The fact is that there are few people that die young from this illness. I mean realistically there are some, but that is not the norm. I do definitely think that you need to go to a different Rheumatologist. I hope that you can see a Rheumatologist that does research into Lupus and really knows what they are doing. Some Rheumatologists specialize in the treatment of Lupus. My doctor does and thank heavens for that. It is not always a given that a person with Lupus will have athlorosclerosis or things like that. Some of the info on the internet is outdated as well. You have to be careful with the internet. There are also fools out there that say that they have a cure and that is pure bull big time. You have to be careful to watch out for those sites too. I do hope that you can see a different Rheumatologist as soon as possible.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.