I feel so bad for you. It is not right for your husband to treat you like that at all. My husband had the idea that he was going to treat me like that and boy did he change his tunes when I went and visited a divorce lawyer and tossed his ass out. He changed his tune real fast and begged for another chance. I gave him that chance and I told him that if he ever dared tell me I waas lazy or faking or anything he would be out permanently. He is very understanding now and that was 14 years ago. If I were you I would not put up with that crap for one nano-second and boy the mother-in-law would get an earfull and her sons belongings, but then again that is just me. I am in no ways telling you to do that. You do need to have a good talk with him and maybe take him with you to the doctor and let the doctor talk to him and express to him just how serious and debilitating this lupus really is. I had my doctor talk to my husband and that helped too. Here you sure won't get treated like that. We definitely understand how you feel. What is sad is that a lot of people don't realize how sick we are, because we don't look sick and that makes the Lupus that much worse to live with. Please keep posting as we do care for you and about you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.