Welcome to the site. My name is Kathy and I have SLE Lupus and have had it most of my life, but I did not get diagnosed until I was 36, because for years the doctors would not listen to me and take me seriously and test me for it. I guess a lot of it had to do with the fact that in my case the disease was mild until I got the Chickenpox at the age of 35 and that is when it got bad and the Sjogrens decided to present itself as well.
It sounds like the Rheumatologist may suspect that you may have some Neuropathy going on as well is why he mentioned about the nerve test. I have Neuropathy and have been through the test. It is not that bad to go through.
I hope that you get some answers and very soon about what is going on. There are a lot of nice folks that come in here and they have some really good information that may help you. Please keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.