Welcome to the site. My name is Kathy and I have SLE, Lupus and have had it for a very very long time.
I hope that you do get to see a different Rheumatologist as this one well he don't sound like he is anyone that I would want to see.
I am sorry to hear that you are having such awful problems. I am wondering if you are on any NSAIDs for the inflamation of your joints and all.
There are a lot of good folks that come in here and they have really good information. Please keep posting as we all care about you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.