It is a small and sad consolation to say that this place is one of the only places where you are not considered to be whining, where the conversation is dominated by a disease and how it wreaks havoc on our bodies and our lives! It is sad to think that commiserating has become our primary means of conversation. It is sad and it appears that it is our truth.
To say that we would virtually give our lives to be able to enjoy just one day, just one 24 hour period, with no pain...no body distortions....no mental fatigue...that would be an understatement. So many people go about their lives, not having to wonder if they can get out of the bed, if they can venture into the sun, if their legs will swell up like elephantiasis, if their head is going to feel like it is in a vice while being pounded with a sledge-hammer. So many people go about their lives not appreciating the fact that they can climb a set of stairs, they can eat without pain, bloating, or regurgitating. They take for granted the fact that they can clean their homes and care for their children. Yet, in spite of all that they can do...can you believe that THEY WHINE about insignificant S#@!..."my hair won't curl...my butt is too small.....my bikini is out of fashion....my boyfriend didn't call.....and on and on and on....."
So, my dear, for you to come to us because you are frustrated with the constant pain, the radical limitations placed on your life, the unwanted transformations of your body, the feelings of being lost and in darkness.....THAT IS NOT WHINING!!!!!!! That is sharing feelings that we all understand because this disease has taken our former life away from us. So, don't ever feel that you are being a complainer. You have every right to be angry, upset, depressed, and frustrated. If you don't, then my GOD, nobody does!!!
I wish that I could ease your pain, love away your unhappiness, bring some light into your darkness. All that I can do is to be your friend, be your understanding friend with no judgments and no criticism. Just understanding, caring, and reaching out to give you my cyber hand to hold, and listen to every word that you say with all of my compassion. Because I care, I understand, and I am here for you.
Look For The Good and Praise It!