Welcome to the site. My name is Kathy. I have had Lupus SLE for most of my life literally. The doctors believe that I have had it since the age of 5 years old or there abouts. I will be 50 in December. I also have the rashes that appears on the hands and feet and it really itches and burns really bad. I am wondering if the rash you talk about is a blistery rash? If it is, it could be Pompholyx Eczema. It itches and burns terribly. My doctor put me on Imuran for it and it has helped a lot. My hands have basically been clear for several years now, but I still get small outbreaks on my feet in the arches of the feet for the most part and it itches and burns big time. I can understand very much how you feel. What other medications are you on?
Pompholyx Eczema is an Auto-immune disorder that they do not know what causes it, but I believe that it is due to the Lupus messing up the immune system. I hope that I have helped some here.
I am wondering if your doctor tried giving you Dapsone for the rash on your hands and feet. This is a very good medication and I did wonderful on it until my body for whatever reason rejected it. I hope to get to know you.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.