lupo, oluwa, & oopsydoopsygirl,
my name is ms. paula, I just found this site recently.
I have lived with lupus since 1990. my mother died from it in 1984.
I know and understand what you are going through.
I have already been there -- several times !! if you have good doctors,techs,nurses,labs,then be selfish and think of your needs
first, you can stop alot of the pain and stress. find the middle that you can
handle,with diet,health care,meds,down time,making the bed,doing the dishes. everything you do has a middle,you have to work towards that goal each day.
if your tired - rest, if your hungry - eat, if your sleepy - sleep. you are going to learn that this illness is "BIG TIME" bad stuff !!! but if you are a
whimp -- it will take you down a miserable road that will show you where bottom "IS". don't go there !! if you need someone to be there for you then your on the right website. we all can help each other. I have been to the point that I know what the words; crazy,depressed,loony,tired,lonesome,grippy,misera ble, and yes suicide,
means.but I made my mind up there are other words that can come into play; hopeful,cheery,upbeat,active,socialize, so remember I'm ready to help.
may each day be full of happiness for you all !!!!