My name id Kathy. I have SLE Lupus and Sjogrens Syndrome. With SJS you have a problem with dry mouth and dry eyes. Sjs is an auto-immune disorder. I am wondering if you have been diagnosed with Lupus as well. If you only have Sjogrens, then they consider it to be Primary. If you have Lupus along with it, then they consider it to be Secondary or overlapping.
Sjogrens can affect the sweat glands of the body, the sinuses due to dryness and dryness of the eyes and mouth and vagina. Sjogrens can also affect the intestines and stomach.
The reason that you need an eye test is to check for the dryness of the eyes, I forget right now due to brain fog the test that they do to check for the dryness in the eyes, but it does not hurt. The doctor can perscribe Ristasis drops for your eyes.
This illness is irritating, but you don't die from it. I forget it can affect the shoulders and hips too and other joints. There is fatigue with it also. They treat this illness with Plaquenil with good results. I hope that I have helped some. Maybe Saysusie will have a better way of explaining it all. God Bless.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.