Welcome to the site. My name is Kathy and I have SLE Lupus and have had it for about 44 years, a long time. I will be 50 in December. I have a younger sister with it and an Aunt who has since passed on that had it. I have been on medications for years. Are the doctors wanting to put you on Plaquenil? This medication is one of the top of the line medications that they use here in the states for Lupus. I hope that you do decide to take the medications. They may even put you in remission. I think that you will still be able to realize your dreams in life. You see years ago, Lupus was thought to be a death sentence, but not anymore. Yes it is a chronic illness with no cure as of yet. You will learn what your limitations are and learn how to live and deal with the illness. I wish you the best hon and I hope that you keep posting. God Bless.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.