My name is Kathy. I was reading your post here and I am wondering if your doctor has ever mentioned putting you on Tramadol for the pain. It is not a Narcotic. I am taking that and it seems to help some. I deal with a lot of pain. I have not had a stroke, but the Lupus causes me a lot of pain in my knees, hips, shoulders and wrists and fingers. I often wish that they would find a cure for this nightmare of a disease too.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.