I have often wondered about the same thing. I have had Lupus for over 44 years and in some respects it has gotten worse, but it is still manageable. I think I just have the cycle thing going on with flares and remission. I hope that it does not get to the point where you I will pass and if it does I hope that I am old and you know not real young. I am going to be 50 and well yes in my case it has progressively gotten worse, but thank heavens this is happening rather slowly. I don't know how else to answer your question. You know there is no cure and they can basically only treat the symptoms. Hopefully one day they will have a cure for it. I hope that I have helped out somehow.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.