Welcome to the site. My name is Kathy and I also have Lupus. I have had this illness for over 45 years. I did not get diagnosed until I was 36 years old. Years ago in the 70's, 80's and 90's it was very hard to get the doctors to listen to you and test you for Lupus. The doctors are finally becomming more aware of this disease and the seriousness of it. They seem to be listening to the patients more. I am glad of that too. For years I had to listen to doctors tell me that I was worrying and stressing needlessly, because there was nothing wrong with me. It was terrible. I nearly died when the Lupus started attacking my heart muscle and that is how I finally got diagnosed. I have been on medication since 1996 and the doctor told me right out that I will be on medications for the rest of my life. He believes that I have had Lupus since around the age of 5. I will be 50 in December. I have learned a lot of ways to deal with this illness over the years and yet every now and then I screw up and end up in a flare. Well I just want to welcome you to the forum. There are a lot of nice folks that come in here and you will meet some of them. Rob is our new moderator and Saysusie is great and a moderator too. They have a wealth of information. Please keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.