I am sorry to hear that you are going through a hard time right now with this horrible illness. I think that it is possible to have flares and not have it show up in the blood every single time. I know that this has happened to me a lot of times. From what my doctor told me, that Lupus is Cyclic. It tends to go in cycles. He told me that there is no cure and that at times the flares will happen. There are times when I do get scared when I flare. I am in a flare right now where the Lupus is affecting my knees and wrists. I have a lot of problems along with the Lupus and I don't tend to go to the doctor with every flare. A lot of times I just tend to see what is happening and then if it gets severe I will see the doctor. I have to see the Rheumatologist every 3 months, because I am on Imuran and Plaquenil and various other medications to have my blood checked to make sure everything is ok. I wish that they could find a cure for this illness and hopefully one day they will so nobody else has to be sick. There are a lot of wonderful folks that come in here and they may have better answers for you. I hope that you get to feeling better and please keep posting.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.