My name is Kathy and I also have Lupus (SLE). I will be 50 in December. I did not get diagnosed with the Lupus until I was 36 years old, but the Rheumatologist believes that I have had it since the age of 5. I understand how scared you are. I got very very ill before I managed to get it confirmed that I indeed have Lupus. I too wondered what the next 10 years would be like or if I would even be around. Well that was 14 years ago. You see though Lupus is cyclic. It tends to run in cycles. You will have good days and you will have not so good days. You will learn how to manage your illness. Just listen to your doctors and take the medications and make the adjustments that you need to make and you should do ok with it. God bless you hun and welcome to the forum.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.