Welcome to the forum. I read your post here and your history reads a lot like mine. I was diagnosed at the age of 36. I will be 50 in December. I am wondering why your doctor did not put you on Plaquenil? Plaquenil is one of the top of the line drugs for Lupus. It can take up to 5 months to get fully kicked in and working, but it helps a lot with the pain and slows down the progression of the disease and it helps with the fatigue. I take Imuran for the lung isssues and skin issues that I have with the Lupus. I also take Clinoril (Sulindac) NSAID for the inflammation. I think you could also mention to the doctor to see if she can put you on Tramadol for the pain in your back and knees. Just some thoughts. Welcome to the forum.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.