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Thread: any hope for brain fog?? I'm new. Help!!!

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    Default any hope for brain fog?? I'm new. Help!!!

    ello all,
    I'll keep it short because with the brain fog I have a tendency to lose focus quite easily. My name is Tyari and I'm 28 y.o. and I was recently diagnosed with SLE and fibromyalgia as of 8-15-08. I have been on disability since 7-29-08 because I became so confused and 'dazed' that I couldn't do my job anymore. I don't know what to do. I've been going to my rheumatologist, pyschologist, psychiatrist, dermatologist and a couple of other specialists and they still don
    t know which is causing the brain fog so they are not treating the fog yet. ( I was also diagnosed with MDD, GAD, panic disorder and dysthymia disorder before they finally found out that it was lupus). I have had the brain fog going on 4 months now on a constant basis. I have had a CT scan, all kinds of bloodwork and more recently an MRI of the brain and the CT scan and MRI didn't reveal anything special. I have to have neuropsychological testing done next. I need some advice, guidance, support. Anything and everything because no one around me has an autoimmune disease so needless to say, its hard for people to understand. I'm on Plaquenil (2x), Relafen (2x), Flexeril (as needed) and Cymbalta (1 x). Any advice, words of encouragement, comments - all welcome. I know I'm missing a bunch of details but please ask any questions and I'll answer. Thank you all in advance. (not so short after all

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    Hello and a warm welcome tyarishanese

    I'm glad you found us.

    Yes there are lots of us with brain fog.

    How long have you been taking the plaquenil and how do you take it?

    I will tell you how I take my plaquenil, but please check with your doctor before you try taking it this way, if you do not already do this.

    I take both pills right before bed with a small tub of yogart. The yogart protects my stomack and taking it before bed helps me to sleep through the worst of the side effects.

    One of the side effects is light headedness and dizzy spells which can lead to the whole brain fog thing.

    I am much better now with keeping focused, but I still have my foggy moments or days.

    Being stressed really really rolls the fog in. So I try to minimize stress as much as possible. Deal with things so they dont gang up on me.

    I keep pens and paper close to me at all times. I write stuff down to remind myself of little things I tend to forget.

    You are and have been dealing with alot, the best thing you can do for your self is make sure you are taking your meds in the best way for your body. I always ask what is the best way to take a medication so I can avoid the side effects. That's why my doctor told me to take the plaquenil with a small tub of yogart before bed.

    Eat properly, keep moving (gentle exercise) proper rest. Strive to be the healthiest you, that you can be.

    This is a friendly and warm site, I'm sure the others will be along soon to welcome you
    Oh look ... a cookie

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    I take my Plaquenil once in the morning and again at night, always after a meal. I've been taking it for a month now. My rheumy advised it takes about 2-3 months to start working. I would be able to deal with the brain fog easier if it were intermittent, but constantly being dazed and confused and feeling lost and not being able to remember anything (retrograde amnesia), it just gets to be too much sometimes, ya know?? I go to 6-7 doctors - neurologist, psychiatrist, pyschologist, dermatologist, rheumatologist, PCP (not to mention whatever other test, lab, etc...)

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    Hi tyarishanese

    That is how I used to tak my plaquenil. Once in the morning and once in the evening.

    My doctor also takes plaquenil, she suggested taking both pills right before bed with a small tub (single serving) or yogart.

    I must say I've been more alert and feel much better through the day. Please ask your doctor if you can do this. I think it will help.
    Oh look ... a cookie

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    I certainly will. Thank you for the information!

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    Hi Tyarishanese...

    Welcoming you..hugs...

    I suspect your medication contributes to your brain fog. I have been on both Flexeril and Cymbalta and it is a double whammy on the fog without a horn feeling.

    Like your mind has come up against a wall and can't find a crack to wedge through to find a thought and to make a coherent sentence..is that you.

    I would suggest asking your doctors to revisit your medication...

    For me, Cymbalta altered me completely...eyes glazed, pupil dilated, brain felt numb, my emotions felt like a blank chalk board with no chalk to write...

    Flexeril..I still dose with it as needed, but it creates a dead feeling within...with the constant yawns. If I dose for more than three days in a row, I get the blues. You too?

    I have had days where I forgot what I did that day...or what I said during a conversation. I forgot recently I made a doctors appointment. I still swear I never did, but they called and reminded me...which I still missed. Twilight Zone...

    For me, forgetting, the daily fog it was mostly the medicine, daily dosing. Though having Lupus...we do get the fog, cognitive behavioral changes...and my lack of sleep.

    I find when I don't dose too long, many days in a row with medicines like pain relievers, the narcotic, opiate kind...muscle relaxers and/or sleep aids my brain functions normally pretty much on a daily basis.

    I do get episodes when I totally draw a blank, and the more I try to recall it, it makes the fog worse, my words don't flow...my train of thought stops, I then begin to feel a bit of anxiety coming..paranoid..like who am I, I am weird......I call it talking like a sausage. Yesterday I took a total of three Lortabs..I was talking like a sausage by dinner time..

    One day I was in the car in the driveway and I forgot if I was coming home or leaving. Looked around, no bags, didn't panic and I realize I was leaving...

    How is your sleep? Sound, restless, deprived? Drink alcohol? All things that can aggravate the Lupus fog even more...

    Again welcome, Tyarishanese..hugs.


    Keep looking for your wellness, be well..
    Hugs,
    Oluwa
    I have Lupus. So *^#@! what.

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    Quote Originally Posted by Oluwa
    Hi Tyarishanese...

    Welcoming you..hugs...

    I suspect your medication contributes to your brain fog. I have been on both Flexeril and Cymbalta and it is a double whammy on the fog without a horn feeling.

    Like your mind has come up against a wall and can't find a crack to wedge through to find a thought and to make a coherent sentence..is that you.

    I would suggest asking your doctors to revisit your medication...

    For me, Cymbalta altered me completely...eyes glazed, pupil dilated, brain felt numb, my emotions felt like a blank chalk board with no chalk to write...

    Flexeril..I still dose with it as needed, but it creates a dead feeling within...with the constant yawns. If I dose for more than three days in a row, I get the blues. You too?

    I have had days where I forgot what I did that day...or what I said during a conversation. I forgot recently I made a doctors appointment. I still swear I never did, but they called and reminded me...which I still missed. Twilight Zone...

    For me, forgetting, the daily fog it was mostly the medicine, daily dosing. Though having Lupus...we do get the fog, cognitive behavioral changes...and my lack of sleep.

    I find when I don't dose too long, many days in a row with medicines like pain relievers, the narcotic, opiate kind...muscle relaxers and/or sleep aids my brain functions normally pretty much on a daily basis.

    I do get episodes when I totally draw a blank, and the more I try to recall it, it makes the fog worse, my words don't flow...my train of thought stops, I then begin to feel a bit of anxiety coming..paranoid..like who am I, I am weird......I call it talking like a sausage. Yesterday I took a total of three Lortabs..I was talking like a sausage by dinner time..

    One day I was in the car in the driveway and I forgot if I was coming home or leaving. Looked around, no bags, didn't panic and I realize I was leaving...

    How is your sleep? Sound, restless, deprived? Drink alcohol? All things that can aggravate the Lupus fog even more...

    Again welcome, Tyarishanese..hugs.


    Keep looking for your wellness, be well..
    Hugs,
    Oluwa
    I actually have been suffering from the brain fog for about 4 months now and I was diagnosed 1 1/2 months ago so that was way before I started taking medication. My sleep is okay for the most part, and some nights its really bad. I haven't noticed a change in the brain fog since I've been taking meds. I don't drink alcohol or do any drugs except whats prescribed for me. My docs just keep saying "well, just hang in there", or "we're going to run this test and hopefully find out whats causing the brain fog".... HOPEFULLY!?!?!?!?!!! I've had blood drawn 5-6 times over the past 2 months. ARGH!

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    All I can say is wow. I have not yet been diagnosed with lupus. I go see a rheumatologist for the first time nov 12th. I too have terrible i guess "fog" if you want to call it that. I will be talking and forget what im saying or if im interrupted they will ask what i was saying and I wont know. Ill go to do something the second I think of it and forget what. Or someone will tell me something and I have to ask what a few times before it really sinks in. It sucks...is that the kind of "brain fog" ur talking about? I didnt think lupus could actually cause this..interesting. Hope all is well as can be for everyone...take care and god bless -Brit
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

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    Quote Originally Posted by Mommyof1
    All I can say is wow. I have not yet been diagnosed with lupus. I go see a rheumatologist for the first time nov 12th. I too have terrible i guess "fog" if you want to call it that. I will be talking and forget what im saying or if im interrupted they will ask what i was saying and I wont know. Ill go to do something the second I think of it and forget what. Or someone will tell me something and I have to ask what a few times before it really sinks in. It sucks...is that the kind of "brain fog" ur talking about? I didnt think lupus could actually cause this..interesting. Hope all is well as can be for everyone...take care and god bless -Brit
    That is exactly what I'm talking about. One of the biggest complaints about having lupus or fibromyalgia is the brain fog that comes with it. I would go to work and be sitting at my computer and totally forget what I was supposed to be doing and I would be totally confused and wouldn't know how to do my job that I absolutely love!!! I've been on disability since 7/29/08. Its ruining my life. I recently gave up driving because it was too uncomfortable. I felt like I was behind the wheel of a car in one of those video games, so my mom takes me to all of my dr. appts and everywhere else that I have to go. I can't stay focused on anything, no matter how important. Holding a phone conversation is virtually impossible because I totally 'zone out' and won't hear a word.

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    Hi Tyarishanese...
    Just out of curiousity_ have you had your thyroid checked?

    I have Hashimoto's which can cause brain fog as well_ or at least contribute it's part to the 'fog' with the gang of other maladies that I have seemed to aquire over time_ and like it's been said already, the meds can also cause one to be dizzy/foggy.

    If I'm interrupted I will forget what I was talking about... During this post I forgot how to spell some pretty easy words and that got me totally off track and I had to begin again... Then there are times when I'm talking about something and just zone out, somtimes I just lose track and other times I just lose interest and get so tired I just stop, not caring to even finish a thought_ The need to conserve energy takes over.

    Does anybody remember that kids show (I'm a child of the '70's) Captain Kangaroo? There was the Captain, Mr Green Jeans, the Moose, the Rabbit and the most annoying character of all was the Grandfather Clock... Who would forget what he was saying - or just stop mid-sentence - or repeat himself over again from the begining. Ughhh! I have become Grandfather Clock... Aaaccck!!!

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