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Thread: Does anyone's leg muscles give out and ya just fall down

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    Default Does anyone's leg muscles give out and ya just fall down

    :?
    I have had diagnosed lupus since 1985. What fun!!! Looking so foreward to hearing from some of you. Sincerely, Connie [butterfly]

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    Default

    Hi Connie :lol:
    Welcome to our forum and our family. I, personally, have never just fallen down, but I do know that it happens. There are several reasons for it, most of which are related to the way Lupus affects our muscles. It also may be due to the way that Lupus affects our central nervous system. So, it is really hard to pin point the reason :cry:
    I hope that you are able to find support, understanding and information here!!
    Again...Welcome
    Saysusie

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    Default crazy isn't it

    I too have been recently diagnosed. My falling down episodes began about 3 years ago. I just thought I was a freak and my platform shoes were the problem. Not so. As I now know. The falling down out of the blue is strange and hard to deal with. You never know when it will strike next. Thank goodness I never hurt myself when this happens. I am sorry to hear that you have this. It is nice however to know that others like your self understand. We seem to be in a world all by outselfs. I am still learning about the disease and trying to make each day count. I am almost at the point where I must give up my fantastic job because I can not do it anymore. Its hard and for along time I really did think I was a freak until recently when I finally got answers as to why all of these things are happening to me. That is the nice part. So far I found that taking Norco, Indomethacin, Lorazepam, and Neurontin are the only things working at the moment for the pain, inflamation, muscle spasms, and again the pain. I hope you can find some answers soon. God bless you. Should you need to talk I am a computer away.

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    Default My mom did

    My mother had lupus as do I. She always had problems with her arms just giving way and sometimes her legs. (So far I haven't had that problem) It got so bad that she would not hold babies unless she was sitting down for fear she would drop them. It came and went for her but was always a fear she had when holding things.

    Dency

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    Default Falling down

    I was just diagnosed and have fallen down 5 times or so since April and twice in the past week. I am also prone to very dizzy spells where I almost collapse. I have been lucky enough to throw myself over counters and once a shopping cart a few times to prevent injury- so I had enough warning (tunnel vision and tingly legs) as I went down. At least now I know why this was happening! Last month I thought I was pregnant or something!

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    Hii all....new here and soooooo glad to find you, now I no longer feel alone in this disease! :lol: As to falling down...yes, my knees just seem to give out and I am on my way down. Luckily have managed to catch myself every time. Now....as far as the dizzy spells, turns out mine were stokes! So please don't ignore them. Those were the only times that I ended up on the floor. Seems that my central nervous system is quite involved in my lupus. As we all have, I had a gazillion diagnosis before it finall settled on lupus, and one of them was central nervous system vasculitis. Good luck to all, so glad to be here. Mary T. :P

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    Default Me too

    Hi there it just happened to me once, about 6 years ago, I went aout ice-skating. and later that day i had to see my specialist, but as i got out of the car in the parking lot my feet just gave way :cry:

    My doctor said it could of been due to the extra exertion i placed on my muscles.

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    Default falling down

    Actually that's what caused a doctor to order blood work on me, and consequently how I found out that I had Lupus. It showed in the blood work, but in regards to the falling down episodes those started 5 years ago for me. I had no clue what was happening the first few times then I started to pick up on some of the symptoms before it would occur and started going down to resting on a knee or just sitting against the wall til it passed. Anything I did in regards to it however cauased me unbearable pain. The pain following it would last anywhere from a few hours to the rest of the day.

    I've been trying to learn as much as I can as all I've actually been told is that Lupus showed in my blood work. This site is helping me to understand that the symptoms I suffer. The only thing I had heard from doctors (neurological and orthopaedic specialists) was "Nothing's wrong, but I'd get used to using a cane if I were you!" I use it regularly, but when the falling down feeling comes the cane isn't enough for me and I sometimes have to rely on friends to get me to a chair so I don't have to crawl.

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    Default

    That happened to me a few times, though I thought I was just being clumsy because it'll happen all of the sudden. I agree with Saysusie that it may be due to the way lupus affects the CNS.
    Living with Lupus is the easy part. Living without the ones that'll support you through can be difficult.

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