Saw new rheumy today
Well, I saw my new rheumy today (or at least the one I'll be seeing until my other rheumy comes back next fall.) Interestingly, this is the rheumatologist I was originally scheduled to see when I first 'got sick.' But, then I got sicker and had to get in to someone who could see me sooner. Funny how things work out.
Anyway, I was so nervous about seeing this new doctor. I was used to my old doctor - we had a good relationship; she understood. I've read so many horror stories here about 'stinky-face', arrogant or unresponsive doctors. Hubby came with me and we were so pleased with the appointment. BIG sigh of relief! Well, at least about the doctor anyway.
Ya know, there's still a part of me (after all this time) that still thinks someone is going to say: "Oh, big mistake. We're sorry...you don't really have lupus or any other autoimmune disease. Let's get you off all that medication." Stupid...I know. Just sailing on the 'ol river denial.'
But, of course, that's not what she said. Duh. So, back up to 10mg prednisone to help manage the pain. The cellcept isn't going anywhere, as I've had heart/lung stuff, and have borderline high creatinine levels so she worries about me developing kidney stuff. And, plaquenil will probably always be my friend so I don't fall asleep standing up! She also suspects limited scleroderma (I have that antibody and some signs of it in my fingers.) Said my Raynaud's may require medication, at least in the winter, because of the possible scleroderma. Also said I really need to find a way to sleep regularly (ya think?) but knows how hard it is. I've tried so many things for sleep, but Ambien seems to work (at least mostly) so she said just keep taking it for now. Sleep is more important than worrying about dependence on the med. She confirmed I have fibromyalgia as well, and found lots of those fun tender points. She actually spent 45 minutes just going over all the notes and questions I had written out for her.
She suggested I do some research on Lyrica and Cymbalta and decide if I want to try one of them for the fibro. She also prescribed an arthrotec cream for my hands, feet, elbows....small joints. My tummy is a bit sensitive and taking NSAIDs for the pain just has to stop. Also encouraged me to do warm therapy pool at a local therapy clinic, and go through their "Power of the Mind" program to learn how to better manage pain, stress, anxiety.
Very fruitful appointment. My hubby is a freak for detail and facts and she gave us lots of both. Now, I just have to sort through all the details and figure out where I want to go from here.
So, off to sit in the hot tub and soak away some aches and pains, and relax enough to sleep. And, maybe cry a little - hubby won't notice cause it'll be dark.....
Hugs to you all. G'night.
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."