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Thread: Helloooo out there

  1. #1
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    Default Helloooo out there

    Hello!

    I am 23YR old female in Australia.I have a family history of rheumatoid arthritis and fibromyalgia. My doctors have always said i have rheumatoid even the rheumatoligist said so.

    My new doctor reckons it is lupus.. i first saw her in june and she diagnosed in july.

    I decided to change doctor when i started having problems with my period. (will get it one month and then not for 2 or 3 and then when i do get it i am bed ridden for 2days with awful cramps... now waiting to see a gyno) and he said it was nothing. So i went to a female dr and she did total blood works and she thinks it is lupus, i have to wait until november to see another specialist... (have had to go private...with the public system i would have to wait until jan 09.... the health system is rural aust isnt too good and i have to travel 5hrs to the private dr too)

    I have always put my fatigue down to ross river virus (got that when i was 14) but now it all makes sense. i get extreme fatigue and joint pain in my hands and ankles after doing some reseach i think i might have lupus nephritis so i am back to the dr's on thurs to ask for more tests fingers crossed i am wrong tho i would hate to have kidney problems.

    I find that stress, sun and alcohol set off my symptons.. i havnt had a drink for 7 weeks now ...cant help but stress.. money work etc

    has anyone experienced period problems related to lupus?

    thanks for any feedback amber xox

  2. #2
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    Default

    Hi ambeer

    I'm not diagnosed yet, but I've had horrific problems since I was 35. I'm 48 now and still no better. I'm going for my second ultra sound next week. I have a cyst on my ovary which is not helping the situations at all.

    Keep pushing for answers and relief.
    Oh look ... a cookie

  3. #3
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    Default

    yer i am hoping that i will get sent for an ultra sound with out having to ask for one

  4. #4
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    I had terrible pain with my menses. It may have been related to the lupus although the Drs. also found out I had a bicornate uterus. This meant I had a septum running down the middle of the uterus and I could not hold my babies to term. My one and only child was a girl who was born 2 lbs. 1/2 oz. at birth. She was 26 weeks in the womb. She is 28 years old now.

    DrinkofWtr

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