My name is Kathy. I can very much relate to what you are saying. The Rheumatologist that I see believes that I have had Lupus since that age of 5 years old, yet I did not get diagnosed until I was 36 and darned near died. I am doing ok with the medications that I have been on for the past 14 years. I will be 50 in December. I am serious, it took the doctors years to finally diagnose my Lupus and that was not until it clearly presented itself in my bloodwork. I have had nearly all of the 11 criteria needed for a diagnosis of Lupus long before I finally got diagnosed. I have a large family history of this illness big time. For years the doctors would just tell me that I was stressing and worrying needlessly. They treated me like I was a Hypochondriac big time and it was sickening. I am glad that they finally correctly diagnosed youa nd that you are now on the medication that will help you. Please keep posting. There are a lot of good folks that come in here and a lot of us have gone through very much what you have gone through.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.