I'm only on plaquenil, and on pain pills when I need them. I guess I've gotten used to a certain level of pain - just ignore it.... I take a rotating "whatever" for pain - aleve, ibuprofen, aspirin, tylenol. Maybe 4 times a week.
I agree, WantItGone, I've done what I can to stay off prednisone as well. I tell my doc "if there's organ involvement, I'll do it, otherwise no." My concern, in addition to the weight gain, is the bone thinning aspects. I have osteopenia, and a STRONG family history of severe osteoporosis.
This week is a bit of a struggle - I had gum surgery yesterday. DANG I HURT! But it isn't the lupus, so much, it is the dang jaw! Not sleeping well last night just made the rest of me ache, so I'm slogging through the day the best I can...sigh. This too shall pass...
~"I find hope in the darkest of days, and focus in the brightest. I do not judge the universe." (Dalai Lama)